Archive for November, 2005

An artist’s impressions

Seven Lives Worth Living

Over the past few months, Lives in Focus has posted photographs and video of people living with HIV/AIDS in India. Srinivas Kuruganti’s photographs capture scenes with only available light and the videos depict people without any special effects.

The series of images here present an artist’s impressions of people affected by the epidemic. The artist Anna Bhushan writes about the work:

I have been traveling to India every year for the last 10 years to visit my family in Hyderabad but until 2003 when I met Srinivas, I, like so many others both in India and abroad, had no idea of the scale
of the HIV epidemic in India.

On my first visit to Freedom Foundation, I spent the afternoon playing with the children there, it was a deeply moving experience and I was so touched by their trust and need for affection, even from a total stranger.

When I returned to London I made a series of portraits based on Srinivas’s photos and my memories of visits to the clinic, which I later turned into, “Seven Lives Worth Living” which was shown at the Royal College of Art summer show in 2004.

The monologues are translated and edited (but not changed) interviews conducted by Srinivas with patients at the clinic and their words, although deeply personal, bring attention to some general social issues associated with the disease.

For instance, Tajunisa’s tragic description of her attempt to kill herself with her three sons and her
belief that her suffering is “God’s wish”, relates to the findings of a 2001 UNAIDS survey in which “36 percent of people felt it would be better if infected people killed themselves and that infected people deserved their fate…34% said they would not associate with people with AIDS, and one fifth stated that AIDS was a punishment from God.” (from avert.org).

Other voices touch on issues of shame, concealment as well as alienation and maltreatment from family and society.

The words and illustrations in this audio slideshow are from “Seven Lives Worth Living.” For more work by Bhushan, please visit her Website: rawmango.com.

A medical miracle

During the 90s, most HIV+ children in the United States were not expected to survive more than a few years. If a child did survive beyond a short period, people considered it a “medical miracle.”

Contuning her battle against AIDS, Deepti is on the verge of become a teenager
click image for video interview

At one center today in the US, the average age of HIV-infected children is 13 and rising, according to a New York Times Magazine article published this summer, because of the new line of AIDS drugs like protease inhibitors and other developments in the treatment of the disease.

In India today, the HIV+ children who are provided with nothing but the first line anti-retro viral drugs (drugs that were used a decade ago in the US) are surviving and thriving beyond the expectations of their caregivers.

Deepti has lived in an AIDS orphanage since she was eight years old. She is on the verge of reaching her teen-years.

How can you help?

Many of the readers of this blog have asked: How can we help the people in the orphanages and centers profiled on Lives in Focus. It is obvious but what they need most is money to provide the treatment, the care and the activities to keep the children healthy. Others need funds to help pay for representation in the courts.

Lives in Focus has compiled a list of places you might send a check. Remember the exchange rate between the dollar and the Indian Rupee turns even $5 dollars into a windfall for these places. The centers below are also international tax-deductible charities. Please do mention that you heard about them through Lives in Focus:

  • Network of HIV Positive People (Family Counseling Center)
    ATTN: M. Swapna
    H.No. 8-3-167/30, Venkateswara Housing Society, Erragadda
    Hyderabad-38, India
  • Lawyers Collective HIV/AIDS Unit
    Programme Management Unit (PMU)
    ATTN: Anand Grover
    Jalaram Kripa, Ground Floor
    No. 61, Janmabhoomi Marg, Fort
    Mumbai 400001 , Indiaemail: aidslaw@lawyerscollective.org
    website: www.lawyerscollective.org
  • Freedom Foundation Bangalore
    ATTN: Ashok Rau
    Office - 180, Hennur Cross,
    Bangalore - 560 043. India
  • Freedom Foundation Hyderabad
    ATTN: Dr. Troy Cunningham
    21 Cariappa Road, Bolarum
    Secundrabad 500 010, India
    Telephone: 011 91 40 2786 2148 or 011 91 40 2786 5530